| HONORED TEAMMATE - 2008 | Alexander Barr |
Born: August 13, 1991 in Bellevue, WA
Current address: Carnation, WA on Tolt Hill
Parent’s Names: Lance and Lisa Barr
Best email to use: lisalkf@earthlink.net (Lisa’s and only checks about weekly)
Diagnosis: Acute lymphoblastic leukemia on April 14, 1997 in kindergarten at Fall City Elementary at the time
Current Status: 3+ years of treatment completed in July 2000, In remission since then
School: Mount Si High School in Snoqualmie – Junior Year
Favorite Classes: Computer Animation, Science
Future Plans: become an entomologist or something related to BUGS
Hobbies: Bug collecting, video games, cycling, building and making projects
Favorite TV shows: Mythbusters, Naruto, Samurai Jack, How Things are Made
Past TNT events: First involved as an honor patient in 1999 for the Honolulu Marathon then a few more since as well as a couple of cycling teams and other Leukemia and Lymphoma Events.
Alexander has supported the society for about 8 years now hoping to help find better and more permanent cures for leukemia and lymphoma. He has memory problems and other long term after effects from radiation and chemotherapy but fortunately no major issues. He dislocated his shoulder several times but hopes he doesn’t so he can ride his bike.
Claim to fame: Youngest person to ever operate the Panama Canal (2000)
Member of the Scarabs Society since 1999 and has shown his bug collection at the Pacific Science Center and Burke Museum several times. |
| HONORED TEAMMATE - 2007 | JOHN SHULA |
John
was diagnosed with Non-Hodgkin's Lymphoma (low grade-small cell) in July of
1994 after having a small lump in my neck biopsied. I was treated for five
months with chemotherapy every three weeks and went into total remission
before Christmas of that year. In February of 1995 Dr. Petersdorf at the
University of Washington Medical Center (UWMC) surgically extracted bone
marrow from my pelvis which was stored at the Fred Hutch Cancer Center for
future use in an autogolous (use own) bone marrow transplant. I remained in
remission for five years until January of 1999. An elevated WBC count
indicated there was a problem and further tests indicated the cancer was
actually Chronic Lymphocytic Leukemia (CLL), not lymphoma. The treatment for
both cancers are similar in many aspects so no harm was done. In February of 1999 I had 4 cycles of a chemotherapy drug called Fludora which quickly
brought me back into remission. The remission only lasted a few months.
After much research, many doctor visits, and prayer we decided a bone marrow
transplant (BMT) would be the best option for a long remission or cure.
John is still currently fighting his cancer and you
can read about his entire experience at his website
where he has kept a journal since day 1.
Visit John's website to read about his challenge with
Non-Hodgkin's Lymphoma. |
| honored teammate - 2007 |
Matthew Feliciano |
|
Current
Status: Living with Cancer. Because there is no cure and NHL is known
to have multiple recurrences, I always consider myself “Living with Cancer”.
How I got involved with Team In Training: After
my first remission I wanted to give something back to the cause so I became
a Team member for the El Tour deTucson Century Ride in 2000. I have done
every El Tour de Tucson since then with TNT.
In my free time I like to: Cycle, I have
completed 8 Century Rides and 1 double century with TNT. I have also done
several other organized rides with many of the friends I have made over the
years with TNT. I just bought a 2002 Suzuki SV650S that I will be spending
some time riding this Spring and Summer.
A few of my favorites: Book: “It’s Not About the
Bike” by Lance Armstrong. When I first wrote this in 2001 this was my
favorite book. I still think it is pretty good but I don’t think it is my
favorite. Currently I’m reading “The Other End of the Leash: Why We Do What
We Do Around Dogs” by Patricia B. McConnell, PhD and “Sportriding
Techniques: How To Develop Real World Skills For Speed And Confidence On The
Street And Track” by Nick Ienatsch.
As an Honored Patient I hope to: Help educate
people in what it is like to have cancer & go through treatment. Help people
understand that there is life during & after treatment. Make participants
believe that they can complete the training & achieve their goals.
Words of Encouragement: Try not. Do or do not.
There is no try. (Yoda)This is still my all time favorite quote. I was a huge
Star Wars fan growing up and I think that this quote can be applied to most
things in life.
"Consult not your fears but your hopes & your
dreams. Think not about your frustrations, but about your unfulfilled
potential. Concern yourself not with what you tried & failed in, but
with what it is still possible for you to do. "
-(Pope John XXIII)
Born: December 29, 1969Diagnosed: Non-Hodgkin’s Lymphoma April, 1999 eMail:
Matt.Feliciano.TNT@gmail.com |
| honored teammate - 2007 |
Margie Fitzpatrick |
Birthday: November 5, 1947
Diagnosed: Hodgkin’s Lymphoma, January 16, 2001
Treatment: 15 Chemo, 40 Radiation, The Standford 5
Current Status: Cured!
My Family
Children: Bill 36, Tricia 34, Bridgett 30, John 28
Grand Children: Spencer
My Favorites
Hobby: Home Improvement
Movies: Evita
Book: Da Vinci Code
Music: Classical, R&B
TV Show: Judge Judy
As an Honored Teammate I hope to show the value of research.
Words of Encouragement: Never Say Never
Email: margyfitzpatrick@juno.com |
| honored teammate - 2006 |
Joshua Alfaro |
Joshua
was diagnosed with ALL (Acute Lymphocytic Leukemia) on February 10, 2005. He
was seven. He had been getting tired for a few months and just didn’t seem
himself. We took him out of most of his after school activities—his
favorites, soccer and gymnastics. Then, just after Christmas, he became very
tired (he was sleeping 16-18 hours per day) with a fever. After three weeks
filled with blood tests and finally a bone marrow aspirate and lumbar
puncture, he was diagnosed at UCSF. After an initial ten days in the
hospital, he was released—already in remission. Now we are nearing the
second anniversary of his diagnosis and are excited that there are only
another 1 ½ years left!
We have finally passed the mid-point in treatment,
a place we couldn’t imagine at the beginning. As his parents, we are so
grateful for the treatment plan that gives us hope for his healthy and happy
future. We cannot imagine the world without our child. We feel so fortunate
that Joshua has done so well—medically and emotionally. We marvel at his
inner strength and wisdom that seem beyond his years.
Currently, Joshua is back in school, 4th grade, and feels good most of the
time. He missed almost the entire second half of second grade. Now, he only
misses about a week of school each month following his treatments, mainly
because he just doesn’t feel very well. He is eager to return to physical
activities. He is taking Tae Kwon Do and is looking forward to earning his
purple belt. He also loves sailing and is hoping to back on the water this
summer.
Today our lives have found a tenuous new ‘normal’. There
is always the silent question of ‘what if…’, but we try to focus on the
present and not the negative possibilities of the future. We firmly believe
in Joshua’s treatment and his success in beating Leukemia. It is hard to
believe that it has been such a short time since parents could hope for a
healthy future for their children after such a devastating diagnosis. Thank
you to Team In Training for being a part of the miracle that has given us
this time with our son.
Born: April 13, 1997
Diagnosed: A.L.L. Feb 10, 2005
eMail: dajojo1@yahoo.com |
| honored teammate - 2005 |
Patrick Seamus Javier Good |
Patrick Seamus Xavier Good passed away peacefully
surrounded by love at his home in West Seattle on
January 30, 2006 after a long hard fought battle
with leukemia. He was born May 2, 1995 in Orange
County, California...
Simple facts...quantifying the framework of a life,
but hardly capturing the spirit of a boy who during
his nearly seven year battle with cancer packed in
more life; more love; and more challenges than many,
many of us ever will... even if given ten times the
years that Patrick had been given.
Stephanie, Patrick's mother, observed after
Patrick's 10th Birthday last May... "Yesterday was Patrick's 10th Birthday. What a
tremendous gift his life has been to me. I have
learned so much about life and living in his
suffering and struggle to live. In so many ways he
still embodies the same qualities he had as a baby.
He is fiercely strong-willed. He is athletic and
strong. His capacity to love and show affection is
unsurpassed. He is thoughtful and kind. His
resilience is humbling. His beautiful smile melts my
heart and warms my soul. It is an honor to be his
mother and I pray each day for one more day in his
company. Thank you God for giving me such a
brilliant gift."
Yes- Patrick is a brilliant gift, and a gift that we
can all share in...His courage and passion for life
inspired every person whose life he touched.
Patrick's courage was called upon not just once to
fight, but four times. Each time, Pat would state,
"I'm not going to quit. You can't make me quit," as
Doctors and Staff questioned his resolve for another
battle with Leukemia. Pat would then nonchalantly
say "What's the big deal...I don't want anyone
making a big deal about this. It's easy...I'll be
swimming by June"
His confidence, his faith and his acceptance give us
insight into the development of faith. Leukemia did
not rule over Patrick. Patrick rose above and he
ruled over Leukemia. In his last week Patrick gave
some special advice to his best brother Brendan. He
said to tell Brendan to "Live it for Fun". That's
just what Pat had always done. Pat let nothing get
in the way of living life to it's fullest with fun.
We can tell you about a boy who received spinal taps
without anesthesia because he would be unable to
swim in the pool or practice soccer in the
afternoon. We can tell you about a boy who had chemo
on a Wednesday and then scored so many goals in a
soccer game on Saturday that the parents on the
other side of the field demanded to see his birth
certificate... if they had only known. Imagine their
surprise if they had instead seen his medical
records, thick as an unabridged dictionary. But
absolutely nothing could stop Patrick who had just
scored ten goals on their kids. Pat was proud. Pat
was a survivor. And always against the odds. From
the very beginning and at every turn he fought the
odds against him and simply amazed the Doctors.
Nothing has stopped Patrick. As we witnessed his
journey from physical life to everlasting life,
Patrick shared many things with us. His simplicity.
His trust. He was never afraid. He told us, just the
other day, that he saw Jesus on every level. Death
does not hold sway on Patrick. He is alive. He is
alive now, fully alive and at the height of power.
He is at play in the fields of the lord right now...
and you don't want to be the goalie on the other
team.
As we celebrate Patrick's life, you may
silently say to yourself, "My God, to what purpose
did Patrick live? Had he lived in vain?" Not likely.
No. Certainly not to his mother and father, not to
his brother, not to his grandmothers and
grandfather, not to his great-grandmothers, not to
his aunts and uncles, his many cousins, not to all
those friends who were proud to call Patrick friend.
Not anymore than the butterfly that makes one moment
more precious, not anymore than the rainbow after
the storm. That rainbow may be here only moments,
but so beautiful in that moment that we are forever
changed by the beauty and the wonder of God.
Patrick Seamus Xavier Good passed away peacefully
surrounded by love on
January 30, 2006 after a long hard fought battle
with leukemia.
But... He is not dead. He did not die. He is alive.
He lives with all of us and in all of us... forever.
Patrick,
We love you,
We are inspired by you,
You will be remembered.
Visit Patrick's website to read about his battle with
Leukemia.
|
|